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"I pray that you being rooted and established in love, may have power, together with all the saints, to grasp how wide and long and high and deep is the love of Christ, and to know this love that surpasses knowledge- that you may be filled to the measure of all the fullness of God."
-Ephesians 3:17-21

Saturday, April 19, 2014

Jack

December 11, 2013 was the start of the hardest journey Jason and I have ever been on. It was a fun day, Harper had her school's Christmas program that day and that afternoon we were going to get to see our newest little one for the first time and find out if Harper would have a sister or a brother. They figured out pretty quickly that we were having a boy. But soon after that the ultrasound tech told us that something was wrong. I can't remember how she phrased it, only that I felt my heart sink into my feet. It felt like all of the blood drained out of my face. When the doctor came in (not our regular OB, who was not at that office that day) he was very cut and dry. It appeared that our sweet boy was having some growth issues in his limbs. They were sending us to UAB. Less than a week later (though it seemed much longer than that) we headed to UAB and heard relieving news. Though our little one did indeed have smaller limbs everything else looked healthy. A few weeks later we returned for a follow-up ultrasound. The news was not as good. The term they used was "lethal". The long drive from Birmingham back home was torture. Every follow-up ultrasound confirmed the lethal diagnosis. Jack's rib cage wasn't growing enough to allow him to breathe once he was born. It was (and remains) so hard to accept because he was so active and spunky while I was pregnant with him. God blessed us with family and friends (all over the country) who prayed for us and with us and cried with us and loved us so well. This is how we managed to put one foot in front of the other for months. We didn't tell many people about what was going on until just before Jack was born. The reason I write this now is just to share our story and explain a little more about what was going on with Jack. We will meet with the geneticists at UAB in a few months to confirm Jack's diagnosis. They are pretty sure they know what his diagnosis is, but the results of their testing will confirm it. We will not share the specific name of his diagnosis for several reasons. One is that it is not something that could have been prevented, no amount of medical research could stop this or treat this or prevent it. Based on what I know the chances of this occurring are one in 20,000. It is not passed down in families and is not a worry to Harper if she has children. The chances of it occurring again in our family is "nearly zero". But it happened. And our son is not here with us but waiting in Heaven until we are reunited again. He never suffered, never sinned, never knew anything but LOVE. We chose the name Jack Andrew because Jack means God is gracious and Andrew means strength. God has been so gracious to us throughout this  journey and has given us strength unimaginable. We are so  glad to have gotten to spend a precious few hours with Jack and will cherish those memories until we get to see him again.

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